Parents and Caregivers!
The main Transplant Unwrapped Website provides adult-friendly educational content and resources for you to learn more about short bowel, intestinal failure, intestinal rehabilitation, and intestinal and multivisceral transplantation. This site serves as an extension of our main website, primarily providing materials for kids. This page has a few additional resources for parents and caregivers that we hope will help make the journey a bit easier for you and your child.
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Short Bowel Syndrome and GI Conditions
What is Short Bowel Syndrome (SBS)?
Short bowel syndrome (SBS) results when the body is not able to properly absorb and digest food normally because a large length of the small intestine is missing or non-functional. This results in the inability of your child to have proper growth and development.
What are the Causes of Short Bowel Syndrome (SBS) in Children?
(not an all-inclusive list, just a sampling of conditions)
In some cases of short bowel, your child is born with the condition:
Volvulus or Malrotation
In other cases, your child may have a disease that requires them to have extensive surgical resection of their bowel, resulting in short bowel:
Necrotizing Enterocolitis (NEC)
For further reading on Short Bowel Syndrome (SBS), visit our main website here.
Helpful Downloads Related to Short Bowel Syndrome (SBS)
Short Bowel Syndrome and Intestinal Rehab Handbook
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What is Intestinal Rehabilitation?
Intestinal rehabilitation is the process of restoring nutritional autonomy. This means weaning from parenteral nutrition (PN) and enteral nutrition (tube feeds), and onto oral feedings. This allows your child to live a life free from PN and its associated complications.
What are the Main Components of Intestinal Rehabilitation?
1. Diet modification
2. Oral Rehydration Therapy
3. Vitamin and Mineral Supplements
5. Surgical Procedures
For further reading on Intestinal Rehabilitation, visit our main website here.
Helpful Downloads Related to Intestinal Rehabilitation
Intestinal and Multivisceral Transplantation
What is an Intestinal Transplant?
An intestinal transplant is an operation to replace a diseased or shortened small intestine with a healthy intestine from a donor.
When Might Intestinal Transplant be Considered?
An intestinal transplant may be considered for people with intestinal failure who develop complications from parenteral nutrition (PN), or if PN is not possible.
Intestinal failure is when the intestine is not able to digest and absorb enough nutrients to support your child's growth and daily function.
In some cases, other factors, such as quality of life, are taken into account when considering an intestinal transplant. Each case is individualized and insurance and transplant center approval will vary. Please discuss your child's situation with the care team.
For further reading on Intestinal Transplant visit our main website here.
Helpful Downloads Related to Intestinal and Multivisceral Transplant