Listing of Available

Resources!

Videos

The Digestive System:

​

• Overview of the Digestive System

Short Bowel Syndrome (SBS):

​

• Part One: Basics of Short Bowel Syndrome

​

• Part Two: Basics of Short Bowel Syndrome

​

• Common Problems in Short Bowel Syndrome

​

• Short Bowel Diet with Owen and His Mom

Intestinal Rehabilitation:

​

• Part One: The Basics

​

• Part Two: Diet

​

• Part Three: Medications

​

• Part Four: Surgery

​

• Preparing for Surgery

Intestinal and Multivisceral Transplant:

​

• Part One: The Basics

​

• Part Two: Reasons for Intestinal Transplant

​

• Part Three: Transplant Evaluation and Listing

​

• Part Four: Surgery

​

• Part 5: Post-Transplant Life

Nutritional Support:

​

• Max and Parenteral Nutrition (PN)

​​

• Part One Tube Feed Series: Feeding Tube Basics

​

• Part Two Tube Feed Series: Types of Feeding Tubes and Their Uses

​

• Part Three Tube Feed Series: Setting Up Your Tube Feeds and the Formula

Miscellaneous Videos: 

​

• Hannah’s Video: Living with Chronic Illness

​

• Miracle’s Video: Having a Sick Parent

​

Other Videos on Transplant:

​

• My Mom is Getting an Intestinal Transplant

​

• Part One Organ Donation: The Basics

​

• Part Two Organ Donation: The Organ Donation Process​

Downloads for Kids

Downloads for Parents and Caregivers

The Digestive System:

​

• Overview of the Digestive System​

Short Bowel Syndrome (SBS):

​

• Overview of Short Bowel Syndrome (SBS) in Children

​

• Pediatric Care Team Appointment Questions and Checklist

​

• Short Bowel Syndrome Handbook (updated version coming soon)

Intestinal Rehabilitation:

​

• Overview of Central Venous Catheters (CVCs) or Central Lines

​

• Preparing Your Child for Surgery

​

• Reward Charts

​

• Intestinal Rehabilitation Handbook (updated version coming soon)

Intestinal Transplantation:

​

• Transplant Appointment Questions and Checklist

​

• A Parent and Caregiver's Guide to Medications

​

• Being Prepared for Transplant

​

• Intestinal Transplant Handbook (updated version coming soon)